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The EGA is an international umbrella group representing the interest of Gaucher patients and those of non-for-profit Gaucher patient groups as well as rare disease groups throughout the world. The EGA is organizing an event for young adult Gaucher patients giving them a unique opportunity to exchange information and ideas. International Gaucher Day Rare But Not Alone is celebrated annually on 1 October. Find out more information about how to get involved by clicking here.
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8211; Botschafter der GGD. Bundesweite Selbsthilfeorganisation für Betroffene und Angehörige mit Morbus Gaucher. Die Gaucher Gesellschaft Deutschland e. 1992 als gemeinnützige Selbsthilfegruppe gegründet, entwickelte sie sich schnell zur bundesweiten Selbsthilfeorganisation. Ärzte und Patienten sowie deren Familien über die Krankheit informiert. Über Behandlungsmöglichkeiten, vor allem die Enzy.
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Эта запись перемещена мною наверх. Именно поэтому я начал вести этот блог. Похоже на Ртр клонировали Киселёва.
Na vida todos evoluímos, tomamos decisões, fazemos opções, arriscamos e ganhamos. O risco faz-nos crescer e a segurança dá-nos estabilidade e conforto; Independente da actividade de cada empresa, a V PRIVATE. Desenvolve o seu trabalho de forma a proporcionar às empresas uma protecção efectiva de pessoas e bens, garantindo a sua continuidade e perenidade. O compromisso da V PRIVATE.
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Everybody on this planet has a dream, a wish, certain things and situations that they strongly desire to be fulfilled someday. But we always believe that dream is just a dream which is beyond our reach and we keep wondering about the fact how is it going to get fulfilled.